The first piggy bank I remember was shaped like the old Primary Children’s Hospital in Salt Lake City. “Primary” is the Mormon program for children under age twelve. The LDS church founded Primary Children’s Hospital in 1922.
When I was a child growing up in Vancouver, we participated in “Pennies By The Inch,” which has been described as “the nation’s oldest grassroots fundraiser.” Each year all the kids in Primary received our own cardboard hospital piggy bank. We were supposed to save enough money by our birthday to donate a penny for each inch of our height. It didn’t seem weird to send pennies a thousand miles away to another country. We knew Children’s Hospital is a special place for kids with special health challenges, wherever they are.
I never met anyone who was treated at Primary Children’s Hospital. But it felt good to send my pennies to Salt Lake, just in case. As Marlo Thomas says about St. Jude Children’s Research Hospital, “Give thanks for the healthy kids in your life, and give to those who are not.”
As a parent, my faith in Children’s Hospital has grown even more fervent. My first paternal vigil was at Seattle Children’s Hospital in 2005. When Eleanor was a month old, her infant gastric reflux spiked. Whole bottles of formula ended up on her fathers, and she stopped being her happy self. Our pediatrician assured us this was perfectly normal reflux. But it kept getting worse. Eventually we took her to the walk-in clinic. They immediately sent us across town to the emergency room at Seattle Children’s Hospital, where Eleanor was diagnosed with pyloric stenosis.
The pylorus muscle connects your stomach to your intestines. Sometimes the valve gets stuck a few weeks after birth. Anything you try to put into the stomach just comes back up. In the old days, infants with pyloric stenosis soon died. Fortunately, surgeons figured out how snip the pylorus and get things flowing again.
It took three days before Eleanor was hydrated enough for surgery. My parents came down from Bellingham, and my sainted ex-mother-in-law Judy flew in from Nebraska. Before the surgery, the nice Korean-American surgeon explained to us what was about to happen. Then he and Eleanor disappeared behind the ominous doors, and the rest of us went around to wait on the other side.
An hour later, Eleanor and the surgeon came out through the happy doors, and she began her swift and complete recovery. We went back to another eleven months of ordinary infant reflux and pediatrician visits, never again begrudging the vomit-stained clothes.
My next trip to Seattle Children’s came six years later, and involved mysterious bacterial pneumonia. I drove to the hospital. Eleanor took a helicopter.
Eleanor, Kamryn, and my ex had taken the train home after visiting Judy in the Midwest. After Oliver and I picked them up in Seattle, Eleanor began writhing in pain in the backseat. By the time we got to the Whidbey Island ferry she was burning up. We drove straight to the hospital on the island instead of going home. The doctors pumped Eleanor full of antibiotics, then put her on a helicopter to Seattle Children’s.
It took a few days in the hospital to bring down Eleanor’s fever. We missed seeing the Broadway tour of “Aladdin.” I gave our tickets to a friend from Seattle Men’s Chorus; he gave Eleanor an oversized Tinker Bell balloon from the hospital gift shop.
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Here’s the key passage from the story of Eleanor’s pyloric stenosis surgery:
“Eventually we took her to the walk-in clinic. They immediately sent us across town to the emergency room at Seattle Children’s Hospital.”
Our upstairs neighbor in Seattle was an ER doctor at Seattle Children’s. When I complained about Eleanor’s melodramatic helicopter ride from Whidbey Island, she said “If you showed up in my Emergency Room with chest pains or a gunshot wound, I’d sent you straight to the grown-up doctors at Harborview.” Likewise, whenever a pediatrician or parent in the Pacific Northwest faces a life-or-death situation, they want their patient at Seattle Children’s.
Last spring my son Oliver started having weird stomach problems. Every four or five weeks he would develop symptoms resembling food poisoning – 24 hours of nausea and vomiting, but without a fever. We talked with our pediatrician and stayed in monitoring mode.
When Oliver experienced more intense symptoms in November after just a two week break, we skipped school and went to the Urgent Care clinic. The doctor ordered an X-ray and labs. She described some of the potential causes, from stress to cancer to Crohn’s disease. Instead, the nurse called that afternoon to say the X-ray images showed alarming signs of intestinal blockage. CT imaging confirmed Oliver had a bowel obstruction.
The good news is a blocked intestine can be fixed with a one-time surgery. As I learned during Eleanor’s first visit to Seattle Children’s, the bad news is your child will die without surgery. The scary news is emergency abdomen surgery has only a fifty percent survival rate.
If Oliver needed surgery, we wanted it to happen at Seattle Children’s. Our pediatrician and I spent the next few weeks folding bureaucratic red tape into holiday bows. Oliver’s insurance approved a referral to the Seattle Children’s Gastrointestinal Clinic – but the first available appointment was in April. Meanwhile, we watched for a return of Oliver’s symptoms. My friend Dr. Ken did his pediatric residency at Seattle Children’s. When I described the test results, Dr. Ken echoed our local healthcare providers: “it’s probably not an emergency emergency right now, but if symptoms return or pain he should go to the ER right away!” Not just any Emergency Room – everyone told us we should go directly to the ER at Seattle Children’s if Oliver’s fever spiked.
Eventually someone looked at Oliver’s X-rays. On Friday, December 6, as I was heading up to Canada for Vancouver Men’s Chorus’s (and Taylor Swift’s) last three concerts, I got a call from Seattle Children’s. The told me Oliver could skip the Gastro Clinic. Instead they scheduled us for a surgery consultation in Seattle on Monday.
Oliver and I met with Dr. Steven Lee, the Korean-American Chief of Seattle Children’s Surgery Division. Dr. Lee told us Oliver needed surgery as soon as possible. A week later, Seattle Children’s called to tell me Dr. Lee would be performing Oliver’s surgery on December 30.
After thirty years in gay choirs, a handful of songs inevitably reduce me to tears whenever I try to sing them, such as the coming out anthem “Michael’s Letter to Mama”; the AIDS-era funeral staple “I Shall Miss Loving Him”; and the homesick ballad “Un Canadien Errant.”
This year Vancouver Men’s Chorus closed the first act of our holiday show with a Cher song: “DJ play a Christmas song, I wanna be dancing all night long.” The chorus repeats the words “that’s the only thing I want this year” as if in a trance. When we began rehearsals in September, Cher felt like a total bubble gum number, just like our Dolly Parton encore “Baby I’m Burnin.’” Then I saw Oliver’s x-ray report, and realized my son needed abdominal surgery to save his life.
Since November, I’ve been unable to sing or hear “DJ Play a Christmas Song” without weeping. I don’t know what Cher is wishing for on the dance floor. But all I wanted for Christmas last year was a surgery appointment at Seattle Children’s.
Oliver and Papa’s story continues in “Abdomen Whisperer”
