Showing posts with label PTSD. Show all posts
Showing posts with label PTSD. Show all posts

Sunday, May 4, 2025

The Boys Who Lived

Vancouver Men’s Chorus is busy rehearsing for our June concerts. (Tickets are on sale at the chorus website.) This year’s theme is Totally Awesome ’80s. We will be singing songs by Cyndy Lauper, George Michael, Eurythmics, Madonna, Tina Turner, Erasure, Pet Shop Boys, Whitney Houston, and more. There will be synthesizers, dancing boys, and big hair. 

I spent the 1980s as a clueless high school student in small town Utah; as an earnest Mormon missionary in Korea; as an overachieving student at Brigham Young University; and as a liberated law student at Yale. I’m like an episode of Stranger Things – 80s music is the soundtrack of my youth. 

More than music and mullets, my relationship with the 80s is defined by one essential fact: I came out of the closet in the middle of the AIDS epidemic. 

I recently read a collection of essays with the title Between Certain Death and a Possible Future:  Queer Writing on Growing Up with the AIDS Crisis. These writers speak for my generation:

Every queer person lives with the trauma of AIDS, and this plays out intergenerationally. Usually we hear about two generations - the first, coming of age in the era of gay liberation, and then watching entire circles of friends die of a mysterious illness as the government did nothing to intervene. And now we hear about younger people growing up with effective treatment and prevention available, unable to comprehend the magnitude of the loss. But there is another generation between these two, one that came of age in the midst of the epidemic with the belief that desire intrinsically led to death, and internalized this trauma as part of becoming queer.

I arrived too late for the fun. Instead, I threw myself into activism. I joined the ACLU of Illinois as Director of the LGBT Rights/AIDS Project at the height of the AIDS epidemic. The Project’s founder, John Hammell, had recently died. Many other pioneering Baby Boomer gay activists were dead, dying, and/or burnt out. Stalwart lesbians and unprepared young gay men filled their empty shoes. 

Some people see personality types through the prism of birth order. As the first of four brothers, I exhibit many “eldest child” behaviors. But when it comes to my gay tribe, I’m part of very specific cohort:  the traumatized gay boys of Generation X, stumbling through life as perpetual younger brothers to the men of the Stonewall Generation. 

This photo of San Francisco Gay Men’s Chorus was taken in 1993, twelve years into the AIDS epidemic. The seven men in white are the original members of the chorus. The 115 men in black represent those who had already died. 

Trauma warps memory. As I learn to live with complex PTSD, I’ve discovered a handful of revealin gaps and glitches in my recollection of past events.   

For example, the quietest moment in our 80s concert occurs during “Eulogy.” Seattle Men’s Chorus commissioned this song in 1985. I have sung and heard “Eulogy” countless times since I joined my first gay chorus three decades ago, including at various memorial services. I’ve repeatedly listened to SMC perform “Eulogy” on their classic Pink Album

Nevertheless, I have no memory of the song. All I can tell you is that it repeates the word “Onward.” Every time VMC rehearses “Eulogy,” I feel like I’m sight-reading a shocking new testament of grief. By the end of the song I’m silently weeping.


Many of the boys died.

The theme of VMC’s June 2018 concert was Gays of Our Lives. As we read through “I Shall Miss Loving You” at our first rehearsal, I realized the last time I’d sung the song was eighteen years before, at my friend Jim Palmer’s memorial. We sang together in Windy City Gay Chorus during the 90s. The miraculous new HIV/AIDS medications came along too late to stop the disease’s progress through Jim’s body. Still, he wanted to see the new millennium. He barely made it. 

I was thirty-five years old. Jim was thirty. I weep every time I try to sing these words:

I shall miss loving you.
I shall miss the comfort of your embrace….

I shall miss the joy of your comings,
And pain of your goings, and, 
After a time,
I shall miss loving you.

Boys like Jim died from AIDS, suicide, drugs, and other causes. Somehow, some of us survived to tell the stories. 

In September 1914, soon after Britain suffered the first casualties of the Great War, Lawrence Binyon published “For the Fallen.” The poem’s fourth stanza has become known as the “Ode to Remembrance”:

They shall grow not old, as we that are left grow old: 
Age shall not weary them, nor the years condemn.
At the going down of the sun and in the morning
We will remember them.

Some of the men lived.

In 1981, a pioneering national tour by San Francisco Gay Men’s Chorus inspired gay choruses to form in cities including Chicago, New York, Seattle, and Vancouver. Forty-four years later, our founder Willi Zwozdesky still conducts Vancouver Men’s Chorus. Willi is the senior conductor in the LGBT choral movement.

VMC has never sounded better. We continue to attract talented new singers. At our recent rustic retreat, Millennials and Gen Y gay boys joined in the skits, rehearsals, and comradery. We listened to our elders around the campfire, and serenaded our conductor with his favourite song.  Along with Willi, a handful of other survivors have held the chorus and the community together through five extraordinary decades.

I am growing old. But the men of the Stonewall generation will always be older than me.







Monday, January 9, 2023

Starting Over

 

For New Year’s, we had the highest tides I’ve ever seen in Bellingham. For Christmas, we were snowed in by a freak ice storm. For solstice, I was trapped at home with covid. 

 

After a long hard year, Bear and I found ourselves surrounded by gloom and doom. But the end is finally in sight.


 

Hope comes more easily in springtime. Five and a half years ago, in May 2017, I emerged from the fog of PTSD and embarked on a couple of hopeful adventures. 

 

First, I filed a lawsuit against Ogden Murphy Wallace, PLLC. They’re the supposedly “independent” private investigators the State’s lawyers used to justify firing me from my position as general counsel to Western Washington University. Despite the impact of living with PTSD, I thought the Ogden Murphy Wallace lawsuit would let me use my legal skills to clear my professional reputation and protect my family.

 

Second, I started publishing essays on this blog. In Phase I of blogging, covering posts in 2017 and 2018, I took advantage of my newfound freedom from thirty years of writer’s block by exploring a variety of topics and styles. My favorite essays about family were “I Come From Good People” and “Sure of You.” My favorite essay about brains was “Inside Out.” My favourite essay about Showtune Night in Canada was “Six Degrees of Kristin Chenowith.” Thanks to the mysteries of Google’s algorithm, the three most viewed blog posts were “About My Yale Classmate Brett Kavanaugh,” “Thing 1 and Thing 2,” and “Fifty Shades of Green Gables.”


Phase II covered posts in 2019 and 2020. I got more ambitious about extended storytelling and the craft of writing. I published a week of “Rock Bottom Stories,” as well as other connected essays about topics like my dramatically improved mental health, various besetting plagues, and the comforts of dog ownership. For the first time I confronted my experiences as a gay man coming out of the closet at the height of the AIDS epidemic. And I wrote about the traumas and triggers I’d experienced while trying to shine a spotlight on dishonest government lawyers. 

Frankly I got carried away with that last topic. Sleazy lawyer stories were taking over the blog, like an oversized moon whose gravitational pull turns ordinary tides into tsunamis. When I looked at the statistics for 2020 I was aghast. I vowed I wouldnt start Phase III until I freed myself from the power of the Lawyer dark side. 

Over the last couple of years, most of my writing ended up in other places besides this blog. But I’m proud of the essays I published here as well, including deeper explorations of community, family, memory, and mental illness. By joining The Narrative Project, I learned about the craft of writing, story-telling through trauma, and finding a writer’s life and community. I assigned myself a graduate reading list in psychology and neuroscience. And I observed my thoughts and feelings through hours of mindfulness and loving kindness meditation. 

 

Along the way, I slowly learned to clear my head. I’m still oblivious to lots of important things, starting with everything social, particularly with the gays. But eventually I learned to think clearly by thinking like a writer, not a lawyer – at least, not like the kind of lawyer Attorney General Bob Ferguson would hire.



In November 2017, King County Superior Court Judge John Ruhl dismissed my claim against Ogden Murphy Wallace on a legal technicality.

 

It was important technicality. Washington law immunizes whistleblowers from liability for claims based on their communications to government agencies. One of the questions before the court in my case was whether whistleblower immunity applies to paid communications by government contractors, like Ogden Murphy Wallace’s supposedly “independent” investigation report attacking my character and competence. In August 2021, the Washington Supreme Court ruled that government contractors can’t be sued for injuries that are “directly based” on communications like the Ogden Murphy investigation report. 

 

Our busy trial judge was so focused on the whistleblower statute that he overlooked my other claims against Ogden Murphy Wallace – the ones that weren’t based on any protected whistleblower communication, such as the investigators’ repeated lies about their contractual assignment. Unfortunately, everyone else in the legal process was also distracted by the shiny statutory construction bauble. I spent the next few years trapped in a Kafka-esque struggle to find a state tribunal that was interested in hearing how the State’s lawyers and investigators colluded in government contract procurement fraud, civil rights violations, and ongoing acts of concealment and obstruction. 

 

After losing my state court claim against the OMW Defendants in the trial court, then winning, then losing, then winning, then losing, I lost my original lawsuit for good in June 2022 when the Washington Supreme Court declined further review.


The most interesting event in my state court lawsuit occurred on October 20, 2017. The day before my response was due to Ogden Murphy Wallace’s whistleblower immunity motion, the defendants produced a suspicious document related to their investigation:  the only surviving copy of the 3/16/16 “Investigation Scope Email” from Ogden Murphy investigator Patrick Pearce to the State’s employment attorneys. This smoking gun email revealed I was the victim of a wrongful termination cover-up scheme involving senior lawyers at the AGO, including some of Bob Ferguson’s top lieutenants.

 

While my original lawsuit against Ogden Murphy wound its way through its doomed appeal, I began tracking down additional incriminating evidence through Public Records Act requests and administrative complaints. Unlike Ogden Murphy, I’m an actual whistleblower. Meanwhile, the State and its co-conspirators continued to execute their strategy of stonewalling, gaslighting, and spoliation.

 

The State refused to respond to my notice of claim and mediation invitation, and threated to sue me instead. So in April 2020, I filed another lawsuit in state court, this one against the Attorney General’s Office, the Governor’s Office, Western Washington University, and their corrupt employees. I was shocked when the State Defendants chose to remove all of my damage claims to federal court. I felt like Br’er Rabbit being thrown into the briar patch. Before I tried to repackage myself as an appellate lawyer and judicial candidate a few years ago, I spent two decades managing complex federal litigation at Bogle & Gates, the ACLU, and Davis Wright Tremaine. I’m much more comfortable litigating in federal rather than in state court.

 

However, it turned out removal was just another short-sighted stall tactic by the State’s lawyers. I didn’t realize cases in the Western District of Washington were paralyzed because our court had the most vacancies of any federal court in the country. After the rest of the baby boomer judges all retired, Judge Richard Jones and Judge Ricardo Martinez held down the fort alone for several years. Our Washington senators and the local legal community succeeding in preventing Donald Trump from making any judicial appointments to fill the vacancies. My lawsuit against the State slowed to a crawl as unfortunate collateral damage. We didn’t even have a trial date or a case schedule.


Once several Biden judges were confirmed, however, the federal court finally returned to a normal litigation schedule. The two-year delay gave me enough time to improve my mental health and to gather a mountain of incriminating evidence. On September 23, 2021, Judge Jones denied the State Defendants’ long-delayed motion to dismiss my claims. Instead, the judge granted my motion to file a detailed amended complaint that includes new damage claims against Ogden Murphy Wallace as well as against the Attorney General’s Office, the Governor’s Office, WWU, and their employees. 

 

It’s as if all the frustrations of my original state court lawsuit never happened. Now we’re on a regular federal court litigation schedule. This month we’re waiting for Judge Jones rulings on the State Defendants’ frivolous Third Motion to Dismiss (here’s my response and their reply) and the Ogden Murphy Wallace Defendants’ motion to dismiss some of my new claims (here’s my response and their reply). Depositions in the Federal Lawsuit are scheduled to begin in February, with a jury trial set for January 2024 in Seattle.



I billed more hours of legal work in 2022 than any year since I was a young litigation associate – plus walking at least six miles a day with Bear to keep my head clear. I also had oral arguments in at least ten court hearings in 2022, which sets a personal record. The hearings were all in my Public Records Act case in state court, which is set for a bench trial before Judge Mary Sue Wilson on February 6-7, 2023, in Thurston County Superior Court. 

 

In 1972, Washington voters enacted the most transparent government accountability law in the nation. I’ve submitted dozens of requests to state and local agencies under the Public Records Act. With the sole exception of the Office of the Governor, each agency acknowledged my PRA requests within five days as required by the statute. In October 2020, I emailed the three public record requests to the Office of the Governor as directed by its webpage. The State’s email servers diverted my emails as “junk.” About the same time, the same thing happened with my emails to addressees at several other government agencies – apparently someone put my name and website on some kind of internet “no-fly” list. 

 

Sadly for the Governor’s Office, the Assistant Attorney General assigned to communicate with me on behalf of the State has a bad habit of ignoring my emails, regardless of whether they end up in his inbox or his junk folder. By the time his clients and his supervisors realized their lawyer dropped the ball, they’d already incurred millions of dollars in potential statutory penalties by delaying the Governor’s response to my public records requests for over a year.

 

Once again, the State and its lawyers refused to take responsibility, instead blaming me for their communication errors. So I filed a separate Public Records Act lawsuit against the Governor’s Office. We’re scheduled for a two-day bench trial in Olympia in February. Here’s my lawyer’s Opening Trial Brief.



In August 2021, the world seemed to be approaching the end of the covid pandemic. The Canadian border finally reopened, at least to visitors who uploaded their vaccination status and recent negative test results to an app. Vancouver Men’s Chorus began rehearsing, but only masked and in limited numbers. 

 

We also seemed to be approaching the end of my lawsuits against the State and Ogden Murphy Wallace. In the federal lawsuit, Judge Jones recognized my disability and granted the reasonable accommodation I requested. In my original state lawsuit, the Washington Supreme Court rejected Ogden Murphy Wallace’s claim that lawyers are above the law. 

 

However, we were actually far from the end – both with the coronavirus pandemic and with my efforts to hold the State and its lawyers accountable. It wasn’t even the beginning of the end. But as Winston Churchill would say, we finally reached the end of the beginning.



In 2021, two longtime members of Vancouver Men’s Chorus commissioned a new work by our resident accompanist and composer Dr. Stephen Smith. They wanted a song that would express the hope and joy the choir felt when we were finally able to sing together again after eighteen months of pandemic isolation and silence. Stephen chose to set to music an 1899 poem by Thomas Hardy. Hardy was one of those gloomy Victorian who looked at the bleak modern world and sighed, yet somehow managed to find hope. 

 

The original title of “The Darkling Thrush” was “The Century’s End.” Stephen arranged the four stanzas as a unison chant, then a two-part duet, then a trio, then with all four sections of the chorus in full harmony. Hardy’s poem begins in desolate twilight, with a storm approaching as “every spirt upon earth seemed fervourless as I.” Suddenly “a voice arose among the bleak twigs.” An ancient song thrush “chose to fling his soul upon the growing gloom.” In Stephen’s arrangement, the thrush’s song is a fiddler’s reel. In the wild, the male thrush uses his distinctive song to attract a mate in the dark.

 

In the folklore of the English countryside, the thrush is known as the bird who sings in the darkest hour. At the conclusion of Hardy’s poem, the narrator recognizes “there trembled through his happy good-night air / Some blessed Hope, whereof he knew / And I was unaware.” 

 

Even when the days get shorter and the nights get darker, we know the light will return. Let us begin the new year in kindness and hope.





March 2023 litigation update:


My lawsuit asserting claims against the Office of the Governor under the Public Records Act was set for trial on Monday, February 2, 2023. However, on the Friday before trial we learned we'd lost our slot to a three-week jury trial involving bull-goring injuries and cattle prod experts. Instead, we held our two-day bench trial on May 1-2, 2023. Closing arguments are scheduled for May 25, 2023.


Sunday, September 18, 2022

Something Rotten


At the end of July each year, my mother and her friend Carolyn spend a girls’ week at a condo in Vancouver’s West End. They watch the fireworks, shop on Granville Island, and walk along the seawall. They also attend the summer musicals at Malkin Bowl in Stanley Park, where the nonprofit Theatre Under the Stars has been producing shows since 1940. 

 

This year TUTS presented two shows in repertory. The first, We Will Rock You, is a British jukebox musical featuring the music of Queen, with a thin plot about a dystopia where music is forbidden. The second show, Something Rotten!, opened on Broadway in 2015. Brothers Nick and Nigel Bottom struggle to find success in an Elizabethan theatre scene dominated by William Shakespeare’s rock star status. Christian Borle won the Best Supporting Actor Tony for his portrayal of Shakespeare as a preening but insecure narcissist. 


Seattle Mens Chorus singing “A Musical” (2016)

Desperate to get an edge over his rival Shakespeare, Nick Bottom offers his life savings to a soothsayer in return for learning what kind of theatrical production is guaranteed to succeed in the future. The only oracle Nick can afford is Thomas Nostradamus, an undistinguished nephew of the famous French seer. Thomas’s predictions turn out to be accurate but slightly garbled. In Something Rotten!’s show-stopping production number, Thomas convinces Nick he can succeed by introducing the world’s first musical. 

 

In 2016, Seattle Men’s Chorus conductor Dennis Coleman retired after thirty-five years with the baton. That was also my first year in Vancouver Men’s Chorus. Instead of singing with SMC, I drove to Seattle with my daughter Eleanor to see the “Everything Broadway” show. Both of us were riveted by SMC’s performance of “A Musical.”


This summer when my mother mentioned she had tickets to Something Rotten!, Eleanor and I immediately played her the original cast recording of “A Musical,” including this classic excerpt:

 

THOMAS:       Some musicals have no talking at all....
All of the dialogue is sung
In a very dramatic fashion.

NICK:              Um, really?

THOMAS:       Yes, really.
And they often stay on one note for a very long time
So when they change to a different note, [finally changing pitch] you notice.
And its supposed to create a dramatic effect
But mostly you just sit there asking yourself
“Why aren
t they talking?”

NICK:              That sounds miserable.

THOMAS:       I believe it’s pronounced Misérable.

Songwriters: Wayne Kirkpatrick / Karey Kirkpatrick        

A Musical lyrics © WB Music Corp., Mad Mother Music


Sure enough, my mother and Carolyn loved Something Rotten. (Mom’s review of We Will Rock You: “It was loud.”) I got a ticket to Something Rotten for the last Wednesday of the summer. As I reported on Facebook, the show was delightful.


The key to surviving Facebook is to remember you’re not the target audience in Facebook’s business model – you’re the company’s productFacebook’s actual customers are paying advertisers. In a popular and apt metaphor, the rest of us are merely a herd of cattle on display. 

 

I’ve run the numbers, and I’m pretty happy with our bovine arrangement. As far as I can tell, the algorithm has never lured me into buying anything. Instead, Facebook serves as a convenient communication platform and auxiliary memory bank. After posting pictures of children, dogs, and travel for fourteen years, I can now rely on Facebook for daily reminders of happy times.

 

For example, according to Facebook I was at the Saint James Theatre seven years ago waiting to watch the original Broadway cast of Something Rotten!. As I wrote at the time, “Shakespeare has always been my idol.”


I’m lucky I have Facebook to remind me – because I don’t have any memory of being at the theatre in New York. In fact, other than the songs I heard on the original cast album, I didn’t remember anything about the show before I saw it again in Vancouver last month.



The last time I was in New York I was on my way to New Haven for my 25th year law school reunion. This was just a few weeks before my new Bellingham physician told me my weird recent symptoms added up to Post-Traumatic Stress Disorder and serious codependency. My disability diagnosis changed my life – but not as much as the abusive behaviour of my employers. 

 

PTSD is a disease of memory. As Bessel van der Kolk observes in The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma, “traumatized people simultaneously remember too little and too much.” Sometimes trauma results in disassociation or repression, leaving no accessible memories at all. More often, trauma prevents key brain modules like the thalamus and hippocampus from integrating our experiences into “normal” memories. According to Dr. van der Kolk, “the imprints of traumatic experiences are organized not as coherent logical narratives but in fragmented sensory and emotional traces:  images, sounds, and physical sensations.”


When I realized I had no memory of seeing Something Rotten! on Broadway in October 2015 – even Christian Borle’s Tony-winning portrayal of my idol Will Shakespeare – I went back to my collection of Playbills to figure what else was missing. 

 

The only other show I saw on that trip was Fun Home, a musical based on lesbian cartoonist Alison Bechdel’s memoir about growing up in a repressed and dysfunctional environment (she was raised in her familys funeral home). While Bechdel was away at college, her father killed himself rather than come out of the closet. 


In contrast with Something Rotten, I remember seeing Fun Home on Broadway. I’ve also read Bechdel’s graphic memoir. But my memories of both are fragmentary.


Theatre Under the Stars

Early in his career, Sigmund Freud successfully treated hysteria patients who had PTSD-like symptoms. Freud reported his patients could not access traumatic memories because of the “severely paralyzing” effect of strong emotions like fright and shame. Freud concluded “the ultimate cause of hysteria is always the seduction of the child by an adult.” 

 

However, as Bessel van der Kolk observes, when “faced with his own evidence of an epidemic of abuse in the best families of Vienna – one, he noted, that would implicate his own father – he quickly began to retreat.” Freud shifted his emphasis from real-world childhood trauma to “unconscious wishes and fantasies” like Oedipus complexes and penis envy. A century later, the leading psychiatry textbook in 1974 stated that “incest is extremely rare,” while opining it probably “allows for a better adjustment to the external world,” leaving “the vast majority” of underaged victims “none the worse for wear.” 

 

Since then, we’ve learned PTSD is very real, and that its not just a soldier’s disease. Here is Dr. van der Kolk’s call to action in The Body Keeps the Score after four decades treating trauma victims:  “Child abuse and neglect is the single most preventable cause of mental illness, the single most common cause of drug and alcohol abuse, and a significant contributor to leading causes of death such as diabetes, heart disease, cancer, stroke, and suicide.”

 

My childhood best friend Paul killed himself a few months after he was diagnosed with Borderline Personality Disorder. In a pioneering study by Dr. van der Kolk and his Harvard colleague Dr. Judith Herman, 81 percent of patients diagnosed with Borderline Personality Disorder also had histories of severe child abuse. On my way to see Something Rotten!, sitting in line at the Peace Arch border crossing, I read more details about the study in The Body Keeps the Score. And I remembered various odd things Paul said or did over the years. Suddenly I made the horrifying connection  my friend Paul likely endured abuse while we were in elementary school together.


Christian Borle and "Will Power" on Broadway

When I visited New York in October 2015, my PTSD diagnosis was still a few weeks away. But I was well on the way to rock bottom. Even after Theatre Under the Stars refreshed my recollection, I still can’t remember seeing Something Rotten!.

 

I can think of several explanations for the memory gap. The first is the general effect of my disability. As a wrote in “Better-ish,” although many of my fuzzy memories from that period finally snapped into place, others never did. Instead my brain concluded the simplest way to adjust my internal clock was to delete two years from the timeline. It was like switching to Daylight Savings Time. Or like when England converted from the Julian Calendar to the Gregorian Calendar, and eleven days were dropped from September 1752. Nevertheless, there’s a silver lining:  I remember half as much Donald Trump presidency as everyone else.

 

Another possible explanation for erasing Something Rotten! is my obsessive relationship with Shakespeare. For example, the best class I took at Yale Law School was Hal Bloom’s graduate Shakespeare seminar. My bardolatry goes beyond ordinary English Major fervor. I was born exactly four hundred years after William Shakespeare. (To the day, after adjusting for the switch to Gregorian calendar). All my life, or at least from 1964 to 2015, I could easily compare myself to where Will was at a particular age:  having his three kids in Stratford during the ’80s, writing classics like Hamlet in the ’90s, retiring to the country in the aughts, and dealing with poor health in the teens. Shakespeare died in 1616, on what would have been his 52nd birthday. On that date four hundred years later, senior managing lawyers at the Attorney General’s Office realized the State’s employment lawyers and their investigator had broken the law and discriminated against me. Rather than correct their errors, they hastily terminated my employment and embarked on the triggering coverup that continues today. My life stalled at age 51. As my health and career unraveled in 2015-16, I felt more doomed that Will Shakespeare. Now it feels like the clock has started again.


But there’s a third explanation for my memory blocking out Something Rotten!. As I sat in Malkin Bowl last month, I recognized some of the characters and plot developments from listening to the original cast album. For example, during Act I, Will Shakespeare’s rock-star narcissism was predictably charming. I was also prepared to see Nick Bottom weave his soothsayer’s misleading fragments of prophecy into the fiasco of Omelette: The Musical. (It’s no Springtime for Hitler, but it’s no Hamlet, either.) What surprised me was Shakespeare’s pathetic efforts during Act II to re-ignite own creative fire. Eventually Will is so desperate he steals Nigel Bottom’s brilliant draft script of Hamlet. After Omelette: The Musical bombs, Shakespeare conspires with the authorities to banish Nick, Nigel, their wives, and the soothsayer to America in order to cover up his own plagiarism.

 

Why did my memory block out the entire show, including the fact I saw it on Broadway? Because Something Rotten! centers on writer’s block. And finding your own voice. Which turns out to be how I finally worked my way through complex PTSD over the last few years. I still dont remember anything from the first time I saw Something Rotten!. But I’m happy so many of the other rotten things from that time in my life are finally beginning to heal.


Daniel Curalli as Will at Theatre Under The Stars




Thursday, September 1, 2022

Relabeling


I met my best friend Paul in 1970 on the first day of Grade 1. Like my best friends in high school, college, and law school, Paul turned out to be gay. (Apparently I’m contagious.) 

 

Paul also turned out to be mentally ill. After struggling with depression, anxiety, and other challenges, Paul killed himself twenty years ago.



I thought of my friend Paul while reading the first chapter of Stephanie Foo’s recent memoir. A few months before he died, Paul told me he felt betrayed by his healthcare providers. While peeking at his medical charts, he discovered he had Borderline Personality Disorder, a bleak diagnosis that was even bleaker two decades ago. No one bothered to tell Paul, which made it even worse.

 

In What My Bones Know: A Memoir of Healing from Complex Trauma, Foo writes about growing up in San Jose with dysfunctional immigrant parents who subjected her to relentless physical and emotional abuse before abandoning her as a teenager. Foo escaped to college, found an effective therapist, and went on to a successful career in Bay Area public radio. Eventually Foo moved to New York to work as a producer at This American Life, the granddaddy of podcasts. 

 

Nevertheless, Foo found herself increasingly frustrated with challenges at work and in her relationships. At age thirty she was still seeing the same therapist, now via Zoom. Eventually she asked “Do you think Im bipolar?”

 

Samantha actually laughs. “You are not bipolar. I am sure of it.” she says. And that’s when she asks, “Do you want to know your diagnosis?”

I don’t yell, “Lady, I've been seeing you for a fucking decade, yes I want to know my goddamn diagnosis,” because Samantha taught me about appropriate communication. Thanks, Samantha. Instead, I say, “Yes. Of course.”

Something in her jaw becomes determined, and her gaze is direct. “You have complex PTSD from your childhood, and it manifests as persistent depression and anxiety. There’s no way someone with your background couldn’t have it,” she says.

“Oh. Yeah, PTSD.” Post-traumatic stress disorder. I had a crappy childhood, so I kinda figured that.

“Not just PTSD. Complex PTSD. The difference between regular PTSD and complex PTSD is that traditional PTSD is often associated with a moment of trauma. Sufferers of complex PTSD have undergone continual abuse-trauma that has occurred over a long period of time, over the course of years. Child abuse is a common cause of complex PTSD,” she says. Then her eyes drift to the corner of the screen. “Oh—we're out of time! Let’s continue this next week.”



We’ve recognized for millennia that wartime trauma causes a predictable constellation of physical and mental symptoms. In the 4000-year old Epic of Gilgamesh, the warrior-hero experiences intrusive memories and nightmares after witnessing the death of his best friend. Greek historian Herodotus described an Athenian soldier who was stricken with blindness in 490 B.C. when he observed the death of a comrade at the battle of Marathon. After the Civil War, veterans developed “soldier’s heart.” The term “shell shock” first appeared in The Lancet in February 1915, six months after World War I began. 

 

Seven years ago I moved to Bellingham to accept a position with the Washington Attorney General’s Office as general counsel to Western Washington University. My dream job became a nightmare when I began exhibiting strange new symptoms, including bizarre anxiety tics and skewed personal interactions. I was shocked when my new Bellingham physician, Dr. Heuristic, diagnosed me with PTSD and serious codependency. 

 

As I told a friend who developed PTSD after serving as an Army Ranger medic in Afghanistan, I was sheepish about sharing the same DSM-5 category with someone like him. He told me not to be concerned, and that soldiers feel lucky they get so many folks’ respect. They worry instead about the many women and children who are scarred by the impact of earlier domestic abuse and do not have access to the help they need.

 

Or as Stephanie Foo writes:

 

It is a great, sexist irony that in our society, PTSD is generally considered a male condition. It is the warrior's disease, a blight of the mind that must be earned by time in battle, in some dangerous overseas desert or jungle. But the real statistics suggest the opposite: Women are more than twice as likely to have PTSD than men. Ten percent of women are expected to suffer from PTSD in their lifetimes, as opposed to just 4 percent of men. But even after #Me Too, a global movement to recognize the legitimacy of women's trauma, treatment for this trauma remains a half-assed endeavor, an afterthought in the shadow of the glory of war. And it has always been this way.



Actually, it usually has been even worse. 

 

Bessel van der Kolk is one of the world’s leading experts in trauma and its treatment. In his classic book The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma, Dr. van der Kolk describes how both sides in World War I mistreated their traumatized soldiers. Depending on the whims of individual doctors, British servicemen originally would either get a diagnosis of “shell shock,” which entitled them to treatment and a disability pension, or “neurasthenia,” which got them nothing. Then in June 1917, the British General Staff issued an order stating “In no circumstances whatever will the expression ‘shell shock’ be used verbally or recorded in any regimental or other casualty report, or any hospital or other medical document.” According to Dr. van der Kolk, “The Germans were even more punitive and treated shell shock as a character defect, which they managed with a variety of painful treatments, including electroshock.” 

 

During World War II, my grandfather’s generation benefited from more humane leadership and more effective psychiatric treatments. They also had the benefit of fighting and winning a “good war,” followed by the GI Bill and fifty years of peace and prosperity. Meanwhile, individuals and society mostly repressed the lingering impact of wartime trauma. 

 

In contrast, Vietnam was a “bad” war in every way, which likely amplified its traumatic impact on American veterans. When Dr. van der Kolk began his medical career with the Veterans Administration during the 1970s, he was struck by the fact that all his psychiatric patients were “young, recently discharged Vietnam veterans,” even though the VA hospital was filled with aging WWII vets who were all being treated for purely “medical” complaints:  “My sense was that neither the doctors nor their patients wanted to revisit the war.”

 

In a sign of the times, the term “Post-Traumatic Stress Disorder” was coined in 1978. The diagnosis was added to the DSM-III in 1980, with criteria that continue to reflect its status as an event-based disorder.



Dr. van der Kolk is the founder of the Trauma Research Foundation and the National Child Traumatic Stress Network. Although his work began with Vietnam veterans, he quickly recognized trauma also affects other vulnerable populations. In particular, “child abuse and neglect is the single most preventable cause of mental illness, the single most common cause of drug and alcohol abuse, and a significant contributor to leading causes of death such as diabetes, heart disease, cancer, stroke, and suicide.”

As the Department of Veteran’s Affairs recognizes, “Many traumatic events (e.g., car accidents, natural disasters, etc.) are of time-limited duration. However, in some cases people experience chronic trauma that continues or repeats for months or years at a time.” In 1988, Dr. Judith Herman proposed a new diagnosis of “complex PTSD.” In addition to the symptoms associated with classic PTSD, complex PTSD includes: 

  • Behavioral difficulties (e.g. impulsivity, aggressiveness, sexual acting out, alcohol/drug misuse and self-destructive behavior) 
  • Emotional difficulties (e.g. affect lability, rage, depression and panic) 
  • Cognitive difficulties (e.g. dissociation and pathological changes in personal identity) 
  • Interpersonal difficulties (e.g. chaotic personal relationships) 
  • Somatization (resulting in many visits to medical practitioners) 

Rather than a single traumatic event, complex PTSD is a consequence of ongoing trauma that occurs over an extended period, such as childhood abuse and neglect, domestic violence, and religious trauma. Because these types of experiences tend to involve betrayals by an individual’s most trusted authority figures, the resulting symptoms focus on impaired interpersonal relationships. Although the DSM-5 does not include diagnoses for complex PTSD or codependency, complex PTSD is already recognized by the Department of Veterans’ Affairs, the World Health Organization, and the British National Health Service.

 

Here is Stephanie Foo's reaction when she ended the Zoom call with her therapist and found the VA webpage after googling complex PTSD”:

 

It is not so much a medical document as it is a biography of my life: The difficulty regulating my emotions. The tendency to overshare and trust the wrong people. The dismal self-loathing. The trouble I have maintaining relationships. The unhealthy relationship with my abuser. The tendency to be aggressive but unable to tolerate aggression from others. It’s all true. It’s all me. The more I read, the more every aspect of my personhood is reduced to deep diagnostic flaws. I hadn’t understood how far the disease had spread. How complete its takeover of my identity was. The things I want. The things I love. The way I speak. My passions, my fears, my zits, my eating habits, the amount of whiskey I drink, the way I listen, and the things I see. Everything—everything, all of it—is infected. My trauma is literally pumping through my blood, driving every decision in my brain.

 

It is this totality that leaves me frantic with grief. For years I’ve labored to build myself a new life, something very different from how I was raised. But now, all of a sudden, every conflict I’ve encountered, every loss, every failure and foible in my life, can be traced back to its root: me. I am far from normal. I am the common denominator in the tragedies of my life. I am a textbook case of mental illness. Well, this explains it all, I think. Of course I’ve been having trouble concentrating on my work. Of course so many people I've loved have left. Of course I was wrong to think I could walk into fancy institutions full of well-bred, well-educated people and succeed. Because the person with C-PTSD, the person who is painted here on the internet, is broken.         



Stephanie Foo’s bleak epiphany comes near the beginning of her story, which is subtitled “A Memoir of Healing from Complex Trauma.” Eventually she recognized her disability had clouded her vision, and learned that healing is “the opposite of the ambiguous dread: fullness.

 

I am full of anger, pain, peace, love, of horrible shards and exquisite beauty, and the lifelong challenge will be to balance all of those things, while keeping them in the circle. Healing is never final. It is never perfection. But along with the losses are the triumphs. I accept the lifelong battle and its limitations now. Even though I must always carry the weight of grief on my back, I have become strong.

 

Foo’s “inner narrative” finally changed “from a hateful whip-bearing tyrant to a chill(er) surfer dude. Like love and bankruptcy, it happened slowly, then all at once.”

 

In many ways my journey through complex trauma and PTSD parallels Foo’s. Both of us escaped from our abusive origins by joining demanding professions – journalism and law – that turned out to be toxic. Yet we both found healing through writing, with the support of true friends and expert healthcare providers. 

 

Nevertheless, my experience with complex PTSD differs from Foo’s in important respects. Like so many other trauma victims, Foo’s symptoms are rooted in the pattern of abuse she suffered at the hands of her own family. I am an outlier because I was betrayed by a different kind of trusted authority figure – the Mormon priesthood leaders who told me homosexuality was a spiritual disease that could be “cured,” and who continue to deny the humanity and existence of LGBT individuals today. Fortunately, in contrast with most people who struggle with complex PTSD symptoms, I had and have the support of the best family in the world. But I also had the traumatic overlay of coming out of the closet at the height of the AIDS epidemic, when silence and rage both equaled death.

 

In contrast with Stephanie Foo, no one ever told me “There's no way someone could come from your background and not have complex PTSD.” Who can predict something like that? As every personal or global disaster demonstrates, individual responses to trauma will vary. What I do know is there’s no way someone could come through all this and not be a trauma survivor. If they weren’t survivors, they wouldn't have made it through – as so many of my tribe can attest. Those of us who remain.



My friend Paul’s anger at his healthcare providers probably contributed to his suicidal distress. Stephanie Foo reacted to her belatedly revealed diagnosis not only with rage, but also with resolve:

 

After I started realizing the magnitude of what having C-PTSD meant, I was livid at Samantha for not telling me about it sooner. This should not have been a secret, I thought. My diagnosis should have been a critical part of the conversation about my mental health this entire time.

 

So Foo fired her longtime therapist and began treatment with a New York psychiatrist who is one of the world’s experts in complex PTSD.

 

Why don’t I complain about my doctor’s original label for my disability seven years ago? Because he got it right. As I’ve reported from the beginning, after hearing about my symptoms and my background, Dr. Heuristic diagnosed me with “PTSD and serious codependency.” In addition to referring me to a therapist who specialized in treating PTSD, he also directed me to read Facing Codependency by Pia Mellody, and to attend weekly meetings sponsored by Codependents Anonymous (“CODA”). Because of my doctor’s experience with the recovery community, he recognized I would benefit from CODA’s group therapy model.

 

As the term is used by CODA, “codependency” refers to a pattern of deeply rooted compulsive behaviors that interfere with individuals’ ability to sustain healthy relationships, maintain functional boundaries, and express their reality appropriately. These are the same symptoms that distinguish complex PTSD from the “classic” PTSD diagnosis in the DSM. At the beginning of each CODA meeting, everyone recites the words “Many of us were raised in families where addictions existed - some of us were not.” I’m one of the “some of us.” It turns out being gay among the Mormons can be more harmful than growing up in a saloon.


Paul and Roger in Grade 4


Labels are not the patient. 

 

This year I’ve been reading through all of Oliver Sacks’ books. Dr. Sacks, a distinguished neurologist who died in 2015, was an extraordinary observer of the great diversity in human thinking. Most recently I finished his classic The Man Who Mistook His Wife for a Hat, a fascinating collection of case studies. In the introduction, Dr. Sacks writes that when he was a young medical student 

 

it was the patients I saw, their predicaments and their stories, that gripped my imagination, and these experiences imprinted themselves upon me indelibly. Lectures and textbooks, abstracted from living experience, left almost no impression. I was, however, strongly drawn to the case histories that abounded in the nineteenth-century medical literature-rich, detailed descriptions of patients with neurological or psychiatric problems. It is only by accumulating case histories of people with similar syndromes, comparing and contrasting them, that one can more fully understand the mechanisms involved and their resonances for an individual life….  With the rise of neuroscience and all its wonders, it is even more important now to preserve the personal narrative, to see every patient as a unique being with his own history and strategies for adapting and surviving. 

 

Since moving to Bellingham, my family has been blessed with exceptional caregivers. In particular, my physician has guided my recovery with insight and compassion. He immediately figured out my weird symptoms added up to Post-Traumatic Stress Disorder and codependency. He correctly diagnosed my tennis elbow and plantar fasciitis. He’s much nicer than Dr. House, the abrasive but insightful head of TV’s fictional “Department of Diagnostic Medicine.” He doesn’t laugh at my jokes about suing people for malpractice, but doctors never do. 

 

I originally gave my doctor his nickname because a “heuristic” is a simple procedure that our brains use to find quick answers to difficult questions. An expert’s various heuristics add up to an effective algorithm. Eventually I figured out my doctor’s heuristic for me. Whenever I show up with some new complaint, he will generally select from a repertoire of three standard responses:

  1. It's just another typical PTSD symptom.
  2. It’s a common side effect of my medications.
  3. It’s what happens when we get older. (He calls these “barnacles.”)

Nevertheless, Dr. Heuristic isn’t trapped by diagnostic categories. He sees each patient as an individual. He’s the opposite of the lawyers that surround me, who are blinded by confirmation bias, and so in love with the sound of their own voices that they cannot hear my scratchy lament. Because my doctor pays attention, he can help his patients find the answers they need. Rather than “Dr. Heuristic,” perhaps a better label for my insightful physician would be “Dr. Epiphany.”